Tuesday, December 3, 2013

Trying to write again and Black Friday

Well, Black friday was ok for me. I got to participate a little by purchasing somethings online. I had about $300 on credit cards to spend, but didn't spend that much.

I'm desperate for a new computer. this one is 15 years old and not worth fixing up any more. I would basically have to gut it (even the motherboard) and start over. I really don't have the money or energy for that any more. So I was looking for a cheap computer.

To my absolute delight, I was able to get a Windows Surface for $200. I had been wanting one of these, but thought I'd get one after they had been out for 10 years and I could get a used one, lol. Now I anxiously await its arrival.

I really needed to get some clothes. I buy 2 packs of t-shirts and 4 pairs of sweats every year, that's my going out clothes and PJs. So I really need to work on the wardrobe situation. Every time I tried to buy clothes this weekend, they were sold out before I got to check out. Oh well, maybe next year.

On the writing front, I have written articles in the past and I plan on getting back to it. The Surface will help a lot, as I spend a lot of time in bed (can't sit at the computer too long). So hopefully I can get back in the swing of things.

I just realized that an article I wrote for Yahoo Voices has been earning a few bucks for me every month. But I haven't received any payments because I hadn't been logging in. Something I hadn't thought about. You can see my contributor page here.

Got a plan, just have to get it going.


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Wednesday, November 20, 2013

Seriously YAHOO?!?!?!

Seriously?!?!

My God. I've only had me email account with since you started. I've watched over the years, get worse and worse. Why would anyone WANT to pay for your service? Why? It's not like they're getting anything better than the free service, they just don't get the awful, lag inducing ads.

I can log in, just fine. Got to my inbox, just fine. Click on a message to open it, no go. I get a "check your network connection or reload the page" error. Well, my connection works just fine. I've tried reloading the page, checking my connection, clearing my cache, etc. Still, no go.


So, I decided to call your 800 number (since I wouldn't be able to open a email from customer service). I go thru all the prompts, wait, then get told I'm being connected to a person, just to hear this: Due to high call volumes we won't be able to answer your call. *click*

And I called the number that paying customers are suppose to use.Come to find out, Yahoo has done an upgrade and everything is all screwed up.....yet again. Not just for free users but for everyone.

Ug. Every time I even come close to thinking about purchasing your service, you do something to remind me why I DON'T.

So thank you yet again Yahoo. The only reason I've stuck it out this long is because everyone knows that's my email address, but I've just about had it. Think I'll find a new service and start changing over. Maybe they'll appreciate it when a user has been around as long as I have.

I do have a Gmail address, maybe I'll start transferring everything to it and use it instead. god knows I've never had problems with it.

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Thursday, November 14, 2013

My health adventures...THE FINALE... sort of, lol

So where was I, hehe

My fabulous neurologist has been running all kinds of tests to figure out what is wrong with my legs, with no answers. So, he decided to to a biopsy of the muscle and main nerve in my right leg. That's the weakest one, it gives out all the time and almost throws me to the floor if I don't catch myself on something.
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I had the biopsy on September 30. It's actual surgery, they knock you out and everything. You even have internal and external stitches. So I settled into 10 days of no walking and just laying on the couch. It really hurt especially the muscle the removed fro my upper thigh, ug. By I survived, mostly. They said it would be a couple months for  the results to come in because it gets sent off to the Mayo Clinic.

Much to my surprise they had the results in before I even got my stitches out, YAY!

I saw the neurologist. For some reason my immune system has gone all wonky and is attacking the nerves in my feet and legs (it's also beginning to effect my hands). This is going to be progressive, it will get worse.

 So we have to try to slow it down.He's starting me on a immune suppressive medication hoping my immune system will calm down and maybe even give the nerves a chance to repair themselves a bit. But that opens me up to a whole slew of other problems, while taking this medications I will be completely open to infection. And really bad infections are a huge side effect of this med. Makes it kind of scary. I'll have to be super careful around my nieces as they always have some sort of sniffle. My dad wants to buy me masks to wear when I go grocery shopping or to doctor appointments.

Not sure how I feel about doing this.

He didn't give what I have a name, so I still don't know exactly what I'm fighting. I like it to have a name. At least then I could join a support group and discuss with other people what I'm going thru. Would be nice to talk to someone about it.

Here's a list of my symptoms: liver irritation, anemia, neuropathy, dry skin (that might be the meds), itchy eyes, sometimes my eyes don't want to focus.

If that sounds like anything you've heard of, let me know. My doctors are pretty much open to testing me for anything, if it might bring a more specific answer.

Oh yeah and nose bleeds. I'm not just talking a dribble either. Once the nose bleed starts it goes on for 1-2.5 hours, yep hours. And it gushes. I've brought it up to my doctors, but they pretty much blow it off, but it's really irritating to me.

I'll try to keep updating as much as I can.I get a feeling when the new med kicks in, I may have to go thru an adjustment week or 2. But I'll try my damnedest.



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Writin again

So I've decided to take up writing again online. I use to be really into it, then life got in the way. Its not really about money (tho that doesn't hurt) but I just enjoy it. I've been writing since I was 15. And its kind of a boost when you write some little something and it gets posted for the entire world. I've also been busy taking pictures of items that need new homes. I just can't get myself to throw out something that is hardly used. I've gone thru 4 full size plastic bins, only have 8 more to go, ug. I'll be posting links to my online sales sites and places where you can read my writing. Photobucket

Tuesday, October 22, 2013

My health adventures part 5......

Sorry these are late,I thought I posted them but actually saved them as a draft...ooopsies.
I'm gonna try to shorten this up so I can get you up to current a bit quicker.

I did really well at home. Withing 2 weeks I went from sliding around in a computer chair that had wheels to a walker. Then about 5 weeks after I got home, I had my cane and a bit more freedom.

I currently see a hematologist, a neurologist, a gastrointestinal doctor, and a liver specialist (can't remember what he's technically called, lol).

I met with a liver transplant specialist. He said he sees patients like me all the time. I DO NOT need a transplant, at least not now, maybe in 20-30 years. He explained that there is some liver damaged but it acting up was caused by something else. My liver is a symptom and something else is the cause.

My hemoglobin keeps bottoming out. It's been as low as 6, it should be between 10 and 12. I was getting sick of getting blood transfusions so my GI doc sent me to the hematologist. He ran tons of tests and couldn't figure it out.So now my home nurse draws blood every week to check it, and if it's low I get  pro-crit injection.

The neuropathy in my feet and legs started 6 months before my liver episode, so the liver doctor figured the answer would be there someplace. So my neurologist has been busy trying to figure out

Okay, I'll spill over into one more post, this is getting way long. But it's the finale, I promise, lol. As I now have some answers.








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Monday, October 21, 2013

My health adventures part 4...

It didn't take long for me to realize what a shit-hole (excuse my french,no other word does it justice) the home was. I experienced watching these people ignore elderly patients, refuse to give them their meds, scream at them. They really couldn't stand me, I was coherent and observant.

They had started giving me a pain pill that I knew I wasn't suppose to take (it would damage my liver further) so I argued with them about it. Then they "threatened" to call the doctor, so I picked up the phone and called for them . Yep, he said I was NOT to get that medication  and couldn't believe they were giving me medications that I had been on all the way back in December, not the ones I was prescribed in March.

I was in the home until April, that's when my insurance ran out and I was ready to run out the door. So, they I had a choice: go home still unable to walk or stay with them. They would take my disability check every month, then bill me for the difference. So, my check is $853 a month and it cost $210 a day to be there. No need to do the math there. I weighed my chances and decided that I was sick of having the life and joy and will sucked out of me by the vampires. I'd rather take my chances at home not walking, at least I'd be in a healthier environment. So home it was.

Needless to say, the director, etc. at the retirement home hated me.

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Sunday, October 20, 2013

My health adventures part 3...

Did i get better? What happened? Um, not a whole lot.

While I was in the home, but had to be hospitalized, I met a really nice doctor. He came in spent some time talking to me and finding out what was going on. I was shocked at this point I had "seen" over 20 different doctors, all of which would watch their watches and run out of the room after exactly 2 minutes. But this guy had already been in my room for 5. So I explain what had been happening, that  needed a transplant and no idea how to go about it.

He leaned over, shook my hand, and assured me I would have a name or phone number to call before leaving the hospital. And he backed it up. I was so impressed, he's now my doctor and I brag about him to anyone that has ears to hear.

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Saturday, October 19, 2013

My health adventures part 2...

In the ER, they called my original doctor. He would NOT readmit me to the hospital until I agreed to go to a nursing home to get physical rehabilitation. Yeah, the doctor in the ER couldn't believe it either. If I didn't go, what were they going to do with me? Dump me on the side of the road?

Keep in mind, they still have no idea why all of this is happening, or exactly what is happening. I'm loosing weight, unable to eat/hold things down. I've already lost over 25 pounds. I can't walk without the help of 2-3 people, my legs won't hold any type of weight.

So I reluctantly agree to go. Now most people would spend a day or two finding out about places and finding one that would best meet the needs they had. That's not the case here, I was given 48 hours to find a place and be gone. So I ended up in the first facility that called me back with an open bed.

When I first got there, the director started to give me the "thank you for choosing us" spiel. I had to inform her that there was no choice involved.

The home is basically set up for people to be dropped off and ignored while waiting to die.

I arrived with a set list of medications that I had been on in the hospital and the home followed it to the letter. Leading to me being over medicated when there was a bit of improvement.

You have to call outside doctors and make appointments, sometimes the home would get you there, but most of the time not.

There are no tests run, no discussion of your condition or how to deal with it. In my case, with liver failure, I was deemed an alcoholic/druggie that wasn't worth their time. One evening when I took a turn for the worse, a nurse asked the director if she should call an ambulance, the director said to do nothing for me, just let me lie there. The nurse was so upset by this, she called an ambulance anyway (one of the times I ended up back in the hospital). She was fired a few weeks later.


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Friday, October 18, 2013

My health adventure part 1


So, they admit me and start running tests. I have every test known to man run., but there's no answers.

Doc 1 says he thinks it's some virus. He runs no other tests and treats me for nothing. He also points out I’m jaundice (yellow).

Doc 2 runs even more tests. When asked what's wrong, he says he doesn't know. Then later changes his answer to chirrosis of the liver. He also tells me I need a transplant. But he has no idea how to go about getting a transplant, who to call or any type of general information. Something he repeats numerous times to not only me, but my family also.

I stay in this hospital from dec2 until dec24. After hearing me complain (I really wanted to spend christmas at home), the doctors say the test results are good and I can go spend time with family. But I still need a liver transplant (remember this, it'll be important later).

I was home for about 4 hours. It didn't take long for the uncontrollable vomiting to return, along with increasing numbness and pain in my legs. I couldn't walk. So 911 was dialed and back to hospital I went.

The fun continues......
 
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Thursday, October 17, 2013

the beginning of my issues....

They seem to be piling up right now. I'll try to start from the beginning and run thru them without sounding like a total psychopath.

I suffer from anxiety and severe depression, I have since my early teens. It's a bitch. Meds have never given much relief. I just grin and attempt to bear it. Tho the anxiety makes it hard and easy at the same time.

My anxiety keeps me isolated. I HATE leaving my apartment and avoid it at all costs (you can at least count on me to always be home). But it has also prevented me from finishing college or having any kind of career. I plan outside activities to be quick. I know when the local store is busiest and avoid it. Being around crowds and strangers causes panic attacks. So it's nicer to stick around home, less stressful.

My doctor use to refer to me physically as "healthy as a horse" even tho I ate horribly and never exercised. Then December 2012 came, I got the flu that turned into pneumonia, so I visited the doctor. She prescribed antibiotics and taking it easy. On the way out of the office, she decided to take a blood test because I looked bloated. I didn't think it was a big deal, it was Friday and I was about to turn 40 that Sunday. The weekend went off with out a hitch. Spent a quiet nite on my bday, didn't even give a thought to the blood test.

Then my phone rang early Monday morning, with my doc telling me to go immediately to the hospital, they were expecting me. I argued a little, just thinking she was blowing things out of whack. Then she informed me that something was wrong with my liver.

So the adventure began.

I was admitted in full blown liver failure, hitting me off guard. After all, I couldn't think of any reason for it happening.

I have a set of posts to explain my adventures in hospital land (to follow). It has been definitely different, not fun.

As of this writing, we're still trying to figure out what's going on with. I'm still unable to drive or stand for long, my 4 prong cane has become my new bestie, my walker has retired.

I live alone and do all right. Tho i have to do things differently than before. I climb stairs one at a time. Can only take out small shopping bags of garbage (read: daily trip to dumpster). Have to strategically plan my monthly shopping trip. Cuz if I run out....I'm out til the next month unless I can talk my sister into making another trip.

We're still going thru tests and brainstorming diagnosis, but haven't found anything yet. My doctors say we might not. I may not get a concrete reason why i got sick, am sick, or how to fix it. In the meantime, all we can do is keep treating the symptoms in an effort to keep my body going.


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I'm still here

No I didn't go into witness protection or get hit by a truck. I've just been away dealing with a lot of real life stuff, like major stuff, health stuff.


I've broken it up into a few different posts (if not, there would been a 1,000 mile long post and I don't want to bore you all to death).

So stay tuned, it's about to get real interesting.

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